I get to see my mommy for the first time. The 2nd of my 4 trips in the ambulence. I am in the box. See my NG tube in my nose. That is how I ate for the first 3 months of my life. I used to scare my parents. I'd pull it out and my mommy would have to feed the tube back into my stomach through my nose. I got a G-tube Aug 1999 so my mommy could see my pretty face without all the tape and tubes. The g-tube was a god send. This was a surgery gone bad. I had to be recussitated 3 times during this surgery. My blood pressure dropped down to 38. I was going to have a brainstem decompression and at the last minute Dr. Krone decided to put in another shunt device if he had been in my brainstem I probably wouldn't be alive today. Short story is nothing is there now they pulled out the shunt and put me back together and I survived. This was July 99. Brainstem decompression was performed later on 17 Feb 2000. It was sucessful! This is me at a Urology appt. I am having a procedure called a Urodynamics performed. I am getting my bladder filled up to see how much pressure it takes before I void. I have had to have 2 of these procedures done prior to having my 2 urethral diliations preformed. I no longer have to be cathed every 3 hours. Yeah!!!! This picture was taken after my brainstem decompression. If you look hard you can see the bandages on my neck too. I also had a bandage on the other side of my head that looks just like the one you can see on the left side. That is where Dr. Krone added another shunt and hooked it to the existing shunt on the right side of my head. This surgery made me so sore and my mommy and daddy had to turn my head every 2 hours and make me cry so I wouldn't stiffen up so badly. This is Cyndi King casting my body brace. I have a pretty bad curature of the spine for such a young child. 
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